Monday, 12 September 2011

From Arno

September 7, 2011
Dear Maureen and members of John's family,
The death of our dear friend John has left a heavy feeling on our hearts, and yet we are grateful that his ordeal is over and we celebrate his life.  We loved him.  We will miss him.  
Recollections of John are deep and lasting.  We genuinely liked him.  After first meeting him at a social occasion, when he told me about his workshop and model ships, I called to ask if I could visit.  John was most gracious.  We hardly knew each other, but after our first meeting I felt that I'd known John for a long time.  We had a cup of coffee and a good chat and spent an hour or so in his world, the workshop.    That was the beginning of a very good friendship.
John spent years at sea, so he understood its ups and downs and he appreciated the meaning of “steady as she goes”.   James A. Garfield (1831-1881), the 20th president of the United States, put it better than I can:

“I have seen the sea lashed into fury and tossed into spray,
and its grandeur moves the soul of the dullest man.
But I remember that it is not the billows, but the calm level of the sea
from which all heights and depths are measured."  James A. Garfield

John sought the calm level of the sea in his carefully measured approach to life.  As they say, what you see is what you got -- no airs, no presumption, opinionated, yes, but thoughtful enough not to try to proselytize.  John had his views and he was comfortable with them.  He seemed to be able to endure differing views without rancor.  He lived his life as much as possible without imposing on others. We’ve come to appreciate the characteristic that is valued so highly here on Arran - - John didn’t complain, he ‘got on with it’.
And, returning to Garfield’s point, John was a metaphor for measurement.  He was a measurer of things -- keeping careful charts of events and using the measurements to assess experiences.  Some people just go from place A to place B.  John planned ahead and then calculated to evaluate the outcome.  He knew when he left A, how long the journey took, how much petrol he had consumed, etc.  It was a special part of his personality.  John presented us with a device that predicts the weather and measures wind speed, temperature, humidity, atomic time and rainfall.  I hope he won’t judge us too harshly, but we’re still surprised when the weather changes!  He made and gave us a device to measure the fuel in our tank.  We used it last week, because the digital device we plugged in and tried to calibrate has never worked properly.
Even as John's health failed and he had to come to grips with the cancer that was consuming him, and the often haphazard approach of his medical care, John tried to be cheery and positive.  He called us every week for the past year, or we called him.  It was always a positive experience to talk with him.  His recent call from Cross House Hospital was to say he would be transferred to the War Memorial Hospital for a few days before returning home.   We know he wanted to be positive for the sake of those around him, even when he must have felt despair.
We enjoyed John’s recollections - - the merchant marine, the Lagg Hotel, his family and his childhood.  We have enjoyed reading his memoirs of Yorkshire and listening to his recordings of life around him.  We were honored that he would share those experiences, because in doing so he was reliving them himself, such was his imagination, and sharing them with us. 
We are reflecting on the inscription on that beautiful bench on the shore at Kildonan, which  asks: "Does the song of the sea end at the shore, or in the hearts of those who listen?"  Knowing John as a friend helps us answer that question with better understanding.  That’s why we celebrate John’s life as we extend deepest sympathy to each of you. 
My planned return to the U.S. this week will prevent me from attending the service on September 13, but Mary will be there and I will be recalling all the fine memories of John that have been collected over the years.
Sincerely,
Arno and Mary

Tuesday, 6 September 2011

John R. Moore 12th January 1936 - 6th September 2011

I asked Maureen this morning if there was anything she wanted to add to the blog. Tears sprang to her eyes and she said "Just that our hearts are breaking. Sitting here day after day is so painful. A sudden death is such a painful shock, but this is unbearable. the only positive about this whole thing is that we have each other and how wonderful the staff are here at the hospital."

She has been staying at the Arran War Memorial Hospital. At around 10:30 I encouraged her to go home, get a change of clothes, a change of scene.

At around 13:15 Angus Adamson arrived. He is the minister and friend of dad. "How are you today?" he asked. "Angry" I replied. "Oh dear, tell me what is wrong?" he asked. "Isn't that one of the stages of grief?" I asked.
I was sitting holding Dad's hand. Angus sat opposite me. I reached forward for his hand, "I am not a believer" I stated, "but I want to thank you for the comfort and support you have offered dad and the family. Thank you so much Angus".
He grasped my hand and put his other hand on dad's shoulder, he said a beautiful pray, dad exhaled.
Dad was gone.

Monday, 5 September 2011

John & Helen

it is so good to keep in touch with John in this way. I hope you are all able to get some rest whilst caring so much for John. I imagine you all round his bed. Love to you Ruth and to Maureen and to Graeme and of course to John the valiant fighter.
John & Helen

Evelyn

Loads of people phoning me and sending me messages by e-mail and facebook from France, even, that`s Roddy and Claudine;  also Allan Macdonald,  Tony Black phoned me tonight,  Maureen Irvine phones all the time,  Paddy from Ayr,  Evelyn Strang from Mearns and Muriel from Orkney, Toni from Australia.   All my friends too sending the best of wishes to John, as I am.  To you too, Ruth and Miriam when you next speak to her and Graeme.  And Maureen, of course. 

Much Love
Evelyn

PS  Nearly forgot  -  Tony Black offered accommodation to anyone who needs it (he says the sheets are clean) or if anyone needs a shower...........    He did leave Maureen a phone message and went to the house with newspaper, did not want to phone again or feels he does not want to come to hospital as maybe just family.  I said he would be good at cheering everyone up!  Ruth has his phone number in case needs it

Dave McKay

We really are thinking about John and Maureen all the time, and
memories keep flooding back - about lads' nights out with the other
John, about Ravi's infernal machines - and others all over the island,
about Burns' suppers at Ashgrove, and his many inspiring visits to my
classes in the high school.

What a guy!

Lov from Dave and Janette.

Running out of titles...

John has been unresponsive for a couple of days now. His only medication is pain control, he hasn't had any food or fluids for a couple of days.
Graeme and Daniella stayed last night. John had some difficulty earlier on. Breathing was difficult - the pneumonia. After that he was fairly settled and his temperature normal this morning.
Will continue to post as and when I can get to Brodick


She doesn't look like this anymore!



Sunday, 4 September 2011

Love from Zoe...

Hello, I am thinking about you all. Please send my love to John, it sounds as if he is surrounded by the people he loves the most and is being well cared for. Can you tell him that I still remember his peanut butter sauce and that although I did not like it then it has become one of my favourites and every time I eat it I think of him! Can you tell him that Toby knows all about the tram in his garden and Emily about the chocolate factory with the box of chocolate at Christmas! Love to all. Zoë

Public weeping

Okay I have to stop crying in the computer shop! First it is right next to the peer so everyone can see me (I am at a computer in the window!) and second because Miriam isn't here to give me a hug and make me feel less foolish!
Just waved her off with Graeme - well, I let him wave her off as I am not at all comfortable with all this public weeping.

I believe leaving comments is still not working - I am sorry, if anyone knows how I can tweak the settings please don't hesitate to let me know at johnrmoore36@btinternet.com. Alternatively, send me your comments and stories there and I will post them for you.

John has slept all day today. He appears to be comfortable. We are heading back soon, hoping that he has some lucidity this afternoon.

Thank you so much for the pictures...hope you all enjoy them? 
Miriam just drove onto the ferry, weeping creeping up my throat, better go wave her off so I don't short the laptop!

Combined Loves


Caring for John

John battled a fever most of the night. His temperature was high and his pain medication was upped twice to make him comfortable.
Nurses all over the world provide such amazing comfort. Perhaps we would receive the same level of care elsewhere, but on Arran in this wee hospital, the service is truly outstanding.
John has moved rooms five times since he was admitted; the sole purpose of these moves was to give him privacy, dignity and peace and quiet. Other patients have been shifted out of wards, giving the family space to visit and John peace and quiet.
The nurses mostly know John and Maureen. They are neighbours, friends or daughters of the same.
The care and attention they provide is extended warmly to all the family. Always available for a chat, tea & toast or a shoulder for comfort - whether it is 06:00, 12:00. 18:00 or 00:00

I stayed with John last night. His snoring through the wall used to drive me potty. Last night, his rhythmic snores and moans lulled me; comforted me.
This morning his fever is down a little, but he is struggling to cough, to clear his chest.

Miriam has to return home later today. It is unimaginably difficult for her to go and equally for her to stay.

Two days running John has had a period of lucidity around 14:00 lasting around ten minutes. Fingers crossed we have that time again today.

Saturday, 3 September 2011


Comments

A couple of people have mentioned that they have been unable to add comments - this should now be rectified.
I do read John all emails and comments. He and Maureen really apprecate all the lovely support.
Graeme has arrived back and John enjoyed a visit from his very close friend today.
He was able to open his eyes and chat to us for almost 10 mins! A gift.


Sleeping Warrior

Yesterday as Miriam and I were coming into Brodick, the clouds were enveloping Goatfell; it lookedlike a volcano. As we turned a cornor, Miriam pointed out that Dad looked like the Sleeping Warrior.

John had a fairly peaceful day. He is receiving wonderful care at Arran War Memorial Hospital. The staff have ensured he has privacy and dignity at all times.

During the night they had to increase his morphine a little. 

His brother Graeme returns to the island today; John knows he is coming and is looking forward to being together.

Friday, 2 September 2011

Father Christmas Really Does Exist.............

Yesterday afternoon the Doctor came to see John. He talked with John and explained that the fluids and antibiotics and canula were no longer working. John gave his permission for treatment to cease. He will now be kept as comfortable as possible with morphine. Maureen stayed with John in hospital last night. 

Ruth and I are now on our way to visit him. Quick update before we go. And I thought I'd share one of my earliest memories of my Dad....

We lived in Old Windsor and it was near Christmas. I was about 2 and had silly habit of falling asleep inside the covers at the bottom of the bed. When I woke I would panic at not being able to find my way back out of bed and would cry for help. Dad came to my rescue. I remember him gathering me up in his arms and taking me to the window of my bedroom. There was snow on the ground and a bus pulled up outside a house on the other side of the street - AND I SAW FATHER CHRISTMAS GET OFF THAT BUS!! This is what Dads do - they make the world a better place.  

Ethics

As the afternoon progresed yesterday, John's fever rose again. He hates having the oxygen, but as his stats plumet we compromise and have the oxygen on for an hour or so. His arms are like pin cusions, the nurses finding it difficult to find a 'good' vein.

Angus Adamson, the minister and Dad's good friend popped in. John was upset that he wasn't well enough to have a chat, or even contribute to the conversation. Angus reasured him and us that Dad benefited from listening in.
I read John emails, comments and good wishes from you all - Arno - he is pleased the measuring stick works but doesnt know what the electronic device is you are referring to! Keep them coming everyone.

Difficult discussions about John's treatment. When to withdraw treatment, leading to discussions amongst ourselves about the ethics of such treatment plans (or non-treatment plans). It is always easier to have a hypothetical view point in the comformt of an arm chair, then dealing with loved ones wishes at the side of their bed.


Thursday, 1 September 2011

Where we are now

For those of you who don't know, John was diagnoses with secondary lung & brain cancer earlier this year.
John's brain cancer has robbed him of his mobility. He struggles to eat or drink and has a pronounced weakness in his hands.
John is exhausted and sleeps most of the time. He has moments of lucidity which vary in length. Sometimes we see flashes of the old John.
He had a fairly restful night last night. Miriam stayed with him at the hospital. His temperature was high again, but seems to be responding to antibiotics.


As you can imagine, this is all quite heart breaking. Would anyone like to share any good stories about John? I'll start, my earliest memory is of him stomping up the stairs to tuck me in at night pretending to be a giant! Him making up a bedtime story about all the things we had done that day...